© 2019 by Global Collaboration on Traumatic Stress

FAIR 

Collaborating to make traumatic stress
research data “FAIR”
Projects

The FAIR Guiding Principles for scientific data stewardship state that data should be Findable, Accessible, Inter-operable, and Re-usable (FAIR). These principles are part of the growing movement toward more open and transparent science.  Making traumatic stress research data more FAIR can promote better science, enhance understanding of trauma impact and recovery, and ultimately benefit trauma-exposed individuals and communities around the world.  But to date most traumatic stress studies have not been designed with data preservation, sharing, or re-use in mind.  Projects in this theme will create resources that can facilitate FAIR data across the field of traumatic stress studies.

Wanted for "FAIR":  Project leaders, co-leaders, and helpers for FAIR Data projects 1 and 2. 

Open to doctoral students and to researchers at any career stage.  May be ideal for early career researchers who would have the opportunity to learn about a wide range of traumatic stress research datasets and to build key skills and knowledge relevant to data sharing and re-use. Most work will be done virtually via email and occasional web/phone conferences.  Qualifications: some experience with traumatic stress research and an interest in how data are organized and shared. Requires excellent organizational, communication, and teamwork skills. If interested, contact Theme 5 leader Nancy Kassam-Adams (adamsn@email.chop.edu).

1. FINDABLE TRAUMA DATA

Indexing traumatic stress datasets and data resources around the world

Can we make traumatic stress data more findable? This project will take a first step in that direction by indexing available traumatic stress research datasets and data resources around the world. We will make this information available online via the Global Collaboration.   (Project leaders: Yaara Sadeh and TBD)

3. CHILD TRAUMA DATA

Sustaining / expanding a child trauma data archive

An international collaborative group of investigators has created the Prospective studies of Acute Child Trauma & Recovery (PACT/R) Data Archive. This project will examine ways to build on this research resource and to expand the preservation and re-use of child trauma research data.  See www.childtraumadata.org. (Project leader: Nancy Kassam-Adams)

2. REUSABLE TRAUMA DATA

Describing traumatic stress studies and data via metadata and controlled vocabularies

“Sharing data is not enough - data need to tell their stories.” Reusability depends on good metadata, as well as common ways of categorizing concepts and variables. This project will build on existing efforts to describe traumatic stress research data drawn from multiple studies, different countries and languages. The first product will be a discussion document on metadata and controlled vocabularies for traumatic stress research data.  (Project leaders: Nancy Kassam-Adams and Maya O’Neil)

4. TRAUMATIC GRIEF DATA

Building an archive for data on adult and childhood grief after traumatic and nontraumatic loss.

A group of researchers, based in the Netherlands, has started pooling data from several research programs on grief in adults and in children to build an archive of data that can be used for continuing research on symptoms, course, and correlates of disturbed and nondisturbed grief following traumatic and nontraumatic loss. This project will examine ways to expand this initiative, to enlarge the dataset and to develop options for re-use of these data.  (Project leaders: Paul Boelen and Lonneke Lenferink)